Sharin' Some Details...

So thankful for each of you who are lifting our Ruby treasure up in prayer.  It is no doubt the power of prayer that she is laying calmly looking around, waving her arm with the IV board and cooing.  Faithful God and faithful friends praying - thank you. 

Dw and I have talked, 

and we feel it would be good to share some 

specifics on our baby girl so that you, our caring friends, 

could pray specifically.

We are not medical experts, but here's what we understand.

Ruby's situation is very complicated.

Typically a child with hydrocephalus has one "cyst"

 that is fluid filled and unable to drain.

Rarely, a child might have two.  Even rarer, a 

child might have three collections of fluid {cysts}.

In Ruby's case though, they can count at least 12.

The brain surgery Emma and I took her for in Mbale, 

Uganda was the same type she is going to have today, just to a deeper extent.

Today the effort is being made to drill holes between the cysts so

 they can "communicate" with each other {and drain the fluid}.  

The immediate prayer needs are for:

Wisdom for the doctors as to exactly where to put the holes.

The holes to remain open.

The draining to be a slooooow process.  

{If it is too quick there is great risk.}

No bleeds in the brain or the lining of the brain.

No stroke.

No infection.

Having an eeg yesterday.  

There is no doubt that the Lord has 

preserved Ruby Grace's life against all odds. 

She is our miracle!!

We are confident that He has a good plan for her,

thank you each for being part of her prayer support.  

I woke up and pulled away from her so I could take this little picture with my cell in the dark.  She sleeps in the night all curled up in my arms......
isn't she perfectly beautiful?
Bet you can figure out exactly why we are so smitten with her.



35 minutes till surgery time.
Will be updating, at least through twitter.
The plan is for a long ICU stay.